The SfAA Podcast Archive

Invisible Battles: Disability, Power, and Powerlessness

Invisible Battles: Disability, Power, and Powerlessness (Disability TIG)
Speakers:
CHAIR: KLEIN, Wendy (CSULB)LILLY, Samantha (U Michigan) A Case Study on the Efficacy of Argentina’s National Mental Healthcare Law ‘Ley Nº 26.657’MCILRATH, Grace (Luther Coll) Invisible Battles of “Ordinary” Mothers: Stories of Disability Advocacy in IowaROBERTS, Michelle (UKY) Everyday Ablenationalism: “Drawing a Check” in Appalachian KentuckyDREXLER, Livy (MI State U) Not Like Any Other School: How the Environment at a Tribal School Challenges Conceptions of DisabilityKLEIN, Wendy (CSULB) Autism and Bilingual Socialization: Perspectives and Practices in Bilingual Families
Abstract
MCILRATH, Grace (Luther Coll) Invisible Battles of “Ordinary” Mothers: Stories of Disability Advocacy in Iowa. This paper discusses the results from conversations with 17 mothers of children with special health-care needs in Iowa. Interviews covered a range of themes, including pregnancy, discovering the disability, doctors, schools, the child, speaking about the disability, parenting, and leadership. Many mothers expressed their longing for a “normal” life doing things “normal families” often take for granted. A fascinating facet of our explorations were the lessons learned about the invisibility of social movements and activism for disability rights in the United States. The erasure of the dominant role of women leaders fighting for maternal and child healthcare rights was astounding. mcilgr01@luther.edu (W107)
 
Our Mission
The SfAA Podcast Project is a student-led initiative to provide audio records of sessions from the Annual Meetings to the public, free of charge. We strive to include a broad range of interests from diverse perspectives with the intent of extending conversations throughout the years. Our ultimate goal is to make these dialogues accessible to a global audience.

Towards a Cultural Ballistics of Guns

PRIBILSKY, Jason (Whitman Coll) Towards a Cultural Ballistics of Guns. This panel brings together new research into gun culture and the aftereffects of gun violence in the contemporary US. In the spaces between the protracted gun debate between unfettered access to firearms and calls for gun control, we highlight ways ethnographic attention can serve to reveal emerging structures of feelings around guns whereby citizens may be simultaneously “shocked and outraged” but also largely accepting of the conditions of gun violence. We also address new forms of visibility in the wake of gun violence that reveal hidden and as yet unexplored manifestations of the proliferation of firearm dangers. pribiljc@whitman.edu (W-78)

Transformations in the Reproductive Domain: Abortion, Birth, and Advocacy in the Post-Roe Era

MARKS, Alejandra (NMSU) Transformations in the Reproductive Domain: Abortion, Birth, and Advocacy in the Post-Roe Era. In recent years, the legal landscape for abortion has been rapidly changing. While some countries like Mexico, Argentina, and Ireland are liberalizing their policies, others, like the U.S. and Poland, are moving toward greater restriction. To understand the future of reproductive rights in these times, it is crucial to examine the cultural and political history contributing to the reversal of rights and to note the responses this reversal provokes. This panel will draw on interdisciplinary expertise in both US and non-US contexts to discuss how their research on birthing practices, abortion policies, and activist movements inform anthropological contributions to advocacy efforts, locally and globally. amarks@nmsu.edu (TH-102)

The Meaning of Data Is “to Give”: Health Equity in an Era of Community Engagement

MCMULLIN, Juliet (UCI) The Meaning of Data Is “to Give”: Health Equity in an Era of Community Engagement. My paper engages the call for increased inclusion of community in research as critical to health equity and a question of data - a question of how we give. I consider the application of community engagement and data gathering within the framework of health equity, then turn to the implications of the call to expand the possibilities for epistemic and institutional change. In an era of everyone and potentially no one doing health equity, we must ask what health equity means as a right when its manifestations are always at the edge of becoming. (TH-91)

“I know it’s not ethnography!”: Reimagining Ethnographic Research and Training beyond Writing Culture

DURBIN, Trevor (KSU) “I know it’s not ethnography!”: Reimagining Ethnographic Research and Training beyond Writing Culture. While critiques of ethnographic methods abound, the primacy of scholarly norms for ethnography have persisted. Many professionals who use ethnographic methods, however, may never write ethnography but instead use ethnographic research for other purposes. As a result, the practice of ethnographic research, on one hand, and methods training and publication standards, on the other, have diverged. Although a well-known problem in some circles, more explicit attention is needed to the limits and possibilities of ethnographic research that is intentionally emancipated from ethnography as a genre of representation. This panel considers these limits and possibilities of ethnographic research beyond writing culture. tdurbin@ksu.edu (TH-48)

A Graphic Novel about Overdose Prevention: A Vision for an Arts-Based Project Co-Created by Medical Anthropologists and People Who Use Drugs

OTAÑEZ, Marty and BURGES, Nikketa (CU Denver) A Graphic Novel about Overdose Prevention: A Vision for an Arts-Based Project Co-Created by Medical Anthropologists and People Who Use Drugs. We share a draft graphic novel co-created by anthropologists and people who use drugs (PWUDs). This work derives from 76 participants who completed interviews in Colorado in 2021. Participants used some kind of mixture of heroin, methamphetamines, cocaine, and fentanyl and experienced one or more overdoses within the past year. The graphic novel addresses overdose reversals via naloxone, stigma, perspectives on harm reduction interventions, and the drug-user activist movement. By previewing our work and soliciting opinions from the audience, we will design a graphic novel that humanizes PWUDs, promotes safer drug supply, and calls for ending the war on drugs. marty.otanez@ucdenver.edu(TH-18)

Successes and Challenges in Recruitment of School-Based Health Centers for Research Supporting LGBTQ+ Health Equity

SHATTUCK, Daniel (PIRE & UNM), RAMOS, Mary (UNM), and WILLGING, Cathleen (PIRE & UNM) Successes and Challenges in Recruitment of School-Based Health Centers for Research Supporting LGBTQ+ Health Equity. School-based health centers (SBHCs) are at the frontlines of healthcare delivery and prevention services for young patients across the United States, including those identifying as LGBTQ+. However, as a vital behavioral, sexual, and reproductive healthcare resource, SBHCs are in the crosshairs of pushback against LGBTQ+ rights and gender-affirming and reproductive healthcare. This presentation explores the impact of sociopolitical factors on recruiting SBHCs in New Mexico to participate in efforts to enhance services and support for LGBTQ+ student patients. Despite pressures from “parents’ rights” groups and funding uncertainty, SBHCs have persisted in recognizing the need to address LGBTQ+ health equity. dshattuck@pire.org (T-62)

Food, Water, and Housing Insecurity

OWUOR, Patrick (Wayne State U), NYAGOL, Hellen and OBONDO, Doreen (Pamoja Community-Based Org), ONYANGO, Elizabeth(U Alberta), ORERO, Wicklife, OWUOR, Judith, and ODHIAMBO, Silvia (Pamoja Community-Based Org), BOATENG, Godfred (York U) Influence of Housing Insecurity on HIV Treatment Outcomes among People Living with HIV in Kisumu, Kenya. Housing insecurity (HI) is inextricably linked to health risk behaviors and poor health outcomes. However, its influence on HIV treatment remains underexplored. This study qualitatively examined the impact of HI on HIV treatment outcomes among people living with HIV in Kisumu, Kenya. We conducted in-depth interviews and focus group discussions with adult men (n=20) and women (45) living with HIV. Participants reported feeling stressed, ashamed, and unable to continue HIV treatment because of housing needs. HI increases the risk of poor health outcomes among people living with HIV. Improving HI may play a critical role in enhancing HIV treatment outcomes. owuor@wayne.edu (F-78)

The Past and Future of Applied Anthropology

GARDNER, Andrew (U Puget Sound) and CHECKER, Melissa(CUNY) The Past and Future of Applied Anthropology. What integral elements might we discern from applied anthropology’s long and storied history? In this roundtable discussion, contributors endeavor to delineate and describe those elements by revisiting one or more of the specific projects, the mentors, or the ideological junctures they encountered in their own trajectory through the discipline. Asked to look both forward and backward, contributors speak to what most clearly illuminated the applied value of anthropology in their life experience, and by contemplating what our planetary future might portend, they consider how anthropology might be best equipped to both assess and address its challenges.gardner@pugetsound.edu (F-62)

Mainstreaming Indigenous Ecological Knowledge: Considering Possibilities and Ethical Dilemmas

BIESEL, Shelly Annette (NPS) Mainstreaming Indigenous Ecological Knowledge: Considering Possibilities and Ethical Dilemmas. Evolving over millennia, indigenous ecological knowledge (IEK) is part of a broader “native science” that researchers and planners are exploring for combatting climate change and meeting the needs of a rapidly changing planet. For example, the White House recently released guidance for applying IEK in federal programs. However, mainstreaming indigenous ecological knowledge poses ethical dilemmas for scholars, practitioners, and indigenous communities. This panel invites scholars, practitioners, and indigenous peoples practicing or working within indigenous knowledge systems to consider the moral and ethical dilemmas of incorporating cultural knowledge into mainstream applications. shelly.biesel@gmail.com (F-48)